Well …. Good and bad, I suppose.
Bad simply in the fact that yep, he’s getting radiation to his head, and naturally that comes with side effects. He’s starting to get that burned feeling, both inside and out, and his pain medication isn’t giving him near the relief it normally does.
He’s fatigued, and says vacuuming the living room yesterday about wiped him out. (I know! You’d think I would have offered to vacuum it myself, wouldn’t you? But …. Um ….. it’s character building. Yeah, that’s it. It helps him to feel useful. ) (And, to be honest, I was sucked into Facebook for most of the afternoon …..)
One of the radiation beams is sort of “nicking” the bottom of his right eye and he feels like there is a constant piece of grit in his eye that he can’t get rid of. Sounds silly, doesn’t it? But it’s driving him crazy and will most likely not go away until this is over.
But --- the good news. The fatigue has actually led to him taking a few afternoon naps, and considering he sleeps so little normally, I think it’s great his body is trying to get the rest it needs to heal. (No, I’m not a doctor, nor do I play one on tv. But anytime you can take a nap, it’s a good thing, right? That’s my motto, anyway.)
He got his first case of supplemental nutrition delivered. It was the wrong kind, sadly, and will have to be returned, but hey! At least we know the paperwork red tape is moving.
He started convalescent leave today. He had really hoped to work all the way through, and it just didn’t happen. In a way, it’s discouraging …. And in another way, how moronic was it of us to think radiation --- REPEAT RADIATION --- to his HEAD --- wouldn’t cause him any problems?
Sometimes optimism can be a tricky thing.
Someone expressed surprise to me last week when I mentioned these problems were chronic and ongoing. Five and a half years since his initial diagnosis, fifteen (16? 17? Who the hell can even keep track?) surgeries later, an MRSA-staph infection where he almost lost his leg, total oral reconstruction, and over 60 rounds of radiation ….. and this person acted shocked to think Blaine might have permanent complications. It was definitely a “no shit, Sherlock” moment. I try not to be all gloom-and-doom when people ask about Blaine because my gosh, that will bore the pants off anyone. But maybe I’m not doing an honest job of reporting things, either.
I’ll have to think about that.
Best news of all?
Radiation is half-over.