Tuesday, February 07, 2006


Day 54 OT

Just in case any of you think now that Kendrie is off-treatment and our lives are plugging along (more or less) like normal, that we’ve forgotten or are less involved with the friends and families we met along the way, let me reassure you that isn’t the case. I still belong to my online support group and can’t imagine letting go of that yet. I still spend WAY too much time reading Caringbridge sites (the dust on my living room furniture will attest to this) and I still worry, celebrate, cheer, and grieve for all the kids we’ve met along the way.

A few families struggling right now that could use some support are:

Keegan, who had a relapse scare last fall, only to find out he actually *has* relapsed at this time. He is beginning a tough new protocol this week and I know his family would most likely appreciate a note of encouragement in his guestbook, if you have a spare minute or two.

Cam, who is dealing with numerous leukemia relapses, yet keeping his game face on and living life as normally as possible while awaiting yet another transplant. Truly, if you look up “tenacious” in the dictionary, you will find a photo of Cameron there! Drop him a note of support, if you can.

Alexia, also dealing with a leukemia relapse, but dealing with a whole lot more…. She and her family have relocated from their home in South America to North Carolina, just three weeks ago, so Alexia can have the transplant necessary to save her life. Although I don’t like to, I can imagine Kendrie relapsing …. I can imagine going the transplant road, although I cringe at how awful and stressful it must be and hate that ANY family has to face it. But what I can’t imagine is doing it in a foreign country, speaking a different language, far, far away from family and friends. Please drop them a quick note; Alexia’s transplant will be in less than ten days!

So don’t think that we care less, or worry less, just because the journal entries I write now are filled with the chaos, insanity, and total gooberness of our mostly-back-to-normal family. We still care about our online friends and know they would appreciate any support you can give them, too.

On to other stuff:

Kendrie stayed home from school on Thursday with a head cold. Nothing more than a case of the sniffles and the need for a good afternoon nap. Of course, always one to “practice what I preach”, I laid down with her for a few minutes and we were enjoying some together-time. Do you remember when your babies were teething, and wanted to be hugged and cuddled most of the day? Dinner didn’t get cooked and the house was a mess and the laundry piled up like Mt. Everest, but it was ok, because you got to cuddle with your baby? You knew they weren’t seriously ill, so you could just enjoy the one day where they weren’t running around like a cyclone and were content to lie on your shoulder and sleep??? Well, *I* remember it and felt like I got a small taste of that on Thursday with Kendrie. I even said to her, “I’m sorry that you don’t feel well, but I’m happy to have you home with me today so we could spend some time together” and she replied, “I remember when I first got cancer and I stayed home with you all the time. Then I got too old to hang out with you.”


This is public plea to the makers of young girls’ clothing in America (or China, or Bangladesh, or wherever the heck it is they make those clothes) to please add at least an inch or two to the waistband of blue jeans. I monitored 5th grade testing last week, and watching those girls bent studiously over the desks, pants inching down like it was a 10-yr old plumber’s convention, was not attractive! Personally I’m going to pray to the patron saint of buttcracks that something be done to stop the insanity.


I don’t know if I ever mentioned it, or said a public THANK YOU to all of you who gave donations to Kendrie’s End-of-Treatment collection (that was *supposed* to be done in lieu of gifts, even though too many people did BOTH!) We were able to make a $170 donation to Caringbridge and a $170 donation to CureSearch in honor of Kendrie, thanks to everyone’s generosity. Thank you so much!


I’m sorry we won’t be able to join all our friends at Camp Sunshine’s Family Day at the Circus this weekend. We went last year, and except for the huge fit Kendrie pitched beforehand because I had brought her the wrong clothes to wear, we had a great time. I hope all of you have a wonderful time this year, also.


One last thing --- Kendrie has re-named herself “The Handsomeness”. More specifically, "Troy ‘The Handsomeness’ Bolton", after the lead character in Disney's High School Musical. (PS Marni, I think it was you that sent the picture …. She adores it!) I only know she has given herself this new nickname because one morning last week on the way to school I heard her talking under her breath. She was practicing a public speech of sorts, mumbling things like “Don’t worry, don’t worry, you’ll all get a turn to sit next to The Handsomeness ….. wait your turn, everybody, there’s enough of me to go around” and I said to her, “Kendrie, who are you talking to?” She informed me that she was practicing what she would say when she got to school that day and all her friends wanted to be with her. I don’t know whether to call that arrogance, confidence, or just a really active imagination!


Well, wish us luck. Kellen’s basketball team is having their second game of the season against those giant mutant boys tonight. I can only hope one or two of the biggest ones have tested positive for steroids at this point and will be kicked out of the game. Otherwise, coming off last week’s loss, things could get ugly. Very, very ugly.

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