Showing posts with label Julianna Banana. Show all posts
Showing posts with label Julianna Banana. Show all posts

Saturday, April 23, 2005

Notes from Julianna

(Note from Kristie: If you don't know who Julianna Banana and her dad Terry are, or what they represent to the world of CaringBridge, well, that's one big rock you're living under! You guys are going to get a kick out of the following journal entry ---- although I'll admit that now I'm a little worried about the security of my position as author on this site ..... would Caringbridge actually allow an overthrow just because he's funnier???)
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We interrupt your normal eloquently-crazed rantings for a Special Caring Bridge News Bulletin:

The ballots have been cast and burned, and the white smoke has billowed out the chimney. The Escoe Family has given in to my pleading and has agreed to let me commandeer this wonderful journal for one day. I’m Canadian correspondent Julianna Banana filling in for Kristie. If you’re looking for Kristie and Kendrie, well, you’re just going to have to slum it over at my Caring Bridge page where the Escoe gals have agreed to class up the place and update my journal for me.

So let’s get this party started the best way I know how…in song! Start humming the Brady Bunch theme song and please, please feel free to sing out loud in your chair with me.

Dada da dada da…

Here's the story of a lovely lady,
Who was bringing up two very lovely girls.
Both of them had hair of gold, unlike their mother,
The youngest one’s getting back her curls.

Here's the story, of a man named Blaine-y,
Who was busy with one boy of his own.
They were two men, clearly outnumbered,
Surrounded by chick hormones.

Till the one day when the lady told her fellow,
That the world must know of Kendrie’s non-stop steroid lunch.
So she started this up this page to share her family.
That's the way we came to know the Escoe Bunch.
The Escoe Bunch, crazy Escoe Bunch.

That's the waaay we came to love the Escoe Bunch!




As I said above, my name is Julianna Banana. I am a 4 year old button-cute girl fighting off the same kind of leukemia as button-cute Kendrie. My personal assistant/man-servant is my poor dad, who types for me as I dictate. I first had the good fortune of “meeting” Kendrie and her mom Kristie thanks to the wonderful ALL-Kids email discsussion group. Kristie joined ALL-Kids about a month after my parents did, and I’ll never forget those words from her first email…

“I’m trying to come to terms with my daughter’s cancer diagnosis. Are there any fat, balding men out there who can comfort me?”

Or something like that, I’m paraphrasing. Not long after that, Kristie started up this Caring Bridge page to help her spread out family and friends stay up to date with Kendrie’s treatment progress. Almost from the get go, the rest of the world could tell that this page was going to be a little, um, shall I say, “different” than the others!

One of the misconceptions about us pediatric cancer families is that we are fate’s helpless victims, that we need to be treated with kid gloves. We somehow become relegated to the sucks-to-be-them, “how are YOU doing” class (cancer families, you know exactly the tone I’m talking about). Well, there is some truth to that, but maybe not for the reasons that the “doesn’t-suck-to-be-them” people realize. Yes, fate kicked us in our collective groin. But this not-so-glamorous job of cancer fighting, particularly leukemia, isn’t always a 24-7 job. In between the clinics, chemo and hospital stays, there’s a whole bunch of living to do! Us kids, we still need to learn to read, we still need to paint pictures and eat glue, and we still need to make friends and play. And we still need to laugh! Yes, cancer changes our lives, but our lives are a lot more normal than you may think.

Enter the Escoes!

There’s no glamour in the steroid-induced 3 a.m. cheese run to Krogers. There’s no laughing when we won’t eat our 3:30 a.m. grill cheese sandwich because we wanted cheese SLICES. There’s no life lessons at the bottom of the 4:00 a.m. puke bucket.

Or is there? Somehow, when Kristie tells it, it IS glamorous, it IS funny, and there IS something profound that seemed to give purpose to it all! We relate, we relive and we connect. And, of course, we laugh. For every documented Kendrie adventure, there’s hundreds of people spread out across the globe saying, “oh don’t I know it, sistah!” And there’s hundreds more who no longer say “sucks to be them”, they read this journal and say “sucks to have cancer, but I bet I would totally do the same thing if my kid wouldn’t eat my grill cheese sandwich because I cut it into triangles instead of squares!” Kristie once told me that she re-read through her journal history, and to her, it seemed like all she did was complain about her kids. Far be it from me to disagree with my elders, but this journal isn’t a crab session, this journal is an entertaining and insightful transcript of an ordinary family living through extraordinary circumstances. It’s like a shelter for us pediatric cancer familes, it’s a place that we can feel normal.

It’s hard to believe that it’s already been over a year and a half since I first came to know of my long distance Georgia peach sister Kendrie. I guess time flies when you’re eating crap sandwiches!

Luv,
Julianna Banana


P.S. – By now you are probably thinking to yourself, “Hey, where’s the rest of this entry? Kristie doesn’t get out of bed for under 5000 words!” Just between you and me, I think Kristie must be on the juice to have as much digital endurance as she does. But you don’t have Kristie today, you’re stuck with me :-) If you want the major verbage, go check out the full screenplay that Mama Escoe wrote back on my page!

Thursday, March 18, 2004

CHEERS FOR OUR NEIGHBORS UP NORTH!!

Week #6 of DI #1

I realize that title might be a bit misleading, considering we live in middle Georgia and pretty much anyone not residing at Disneyworld is technically a neighbor to our north. But today, specifically, I am speaking of that great country Canada and all it has to offer.

Despite living in Minot, ND for four years, only fifty or so miles from the Canadian border, I’ve not spent much time in the land of Cannuks. Blaine and I drove up once to the infamous International Peace Garden, a botanical garden which commemorates the long and peaceful co-existence of the people of Canada and the US. Straddling the cities of Boissevain, Manitoba and Dunseith, North Dakota, we made the two hour drive one spring day not realizing that as far north as we were, nothing much blooms until summer, so we basically drove two hours to see dirt. But what nice dirt it was!

So, I want to share with all of you a few ways in which the people of Canada have made our lives better, and more enjoyable, in case you weren’t aware, like I wasn’t aware.

TOP TEN BEST THINGS TO COME OUT OF CANADA:

1. Superman! Created by Joe Shuster of Toronto in 1938. (Let me speak up now and say that I got all of this information off of a Trivial Pursuit website and if any of it is inaccurate, well, that’s life.) While I don’t personally give two hoots about the Man of Steel, he and all his superhero friends have sure made my son and youngest daughter happy.

2. Long Distance Telephone Calls – made for the first time in 1876 by Alexander Graham Bell (geez, I always thought he was American) between the Ontario communities of Mount Pleasant and Brantford. While I don’t spend quite as much time on it as I did during my teen years, I still really love the phone. Especially my neon green cell one.

3. The Anti-Gravity Suit – invented by W.R. Franks at the University of Toronto in 1940. Well, I’ll be honest, it hasn’t really affected my life much, but I could sure be the life of the party if I brought one of these along!

4. Instant Mashed Potatoes – invented in 1961 by Edward Asselburgs of the Canadian Dept of Agriculture. I’ve never pretended to be Betty Crocker and these little babies have saved me HOURS in the kitchen! Just remember, though, if you’re feeding them to Kendrie during a steroid pulse --- white, with no spices, herbs, or pepper!

5. The Johnny Jumper – a ceiling suspension harness designed by Olivia Poole, mother of 7, to keep babies entertained. Mother of 7???? No wonder she invented it. My only complaint is that they don’t come in versions that will hold a kid who weighs 55 pounds.

6. The numerous people who have contributed to our lives through artistic contributions:

Michael J. Fox (best role ever, the voice of “Chance” in Homeward Bound … not that I’ve seen it about a MILLION times!)

Hume Cronyn (come on, is there *anyone* out there who didn’t love Cocoon?)

Bryan Adams, Alaniss Morissette, and Maynard Ferguson; musicians that I enjoy. Celine Dion, a musician that I DON’T enjoy, but I won’t hold that against anyone in Canada personally.

And yet, hands down, the best things to come out of Canada, at least in my opinion, are the online friendships I have made with other parents of kids with cancer. (Canadian parents, duh, otherwise what would be the point to the list?????) Let me introduce you to a few:

7. Katie, an adorable three year old who was diagnosed in August of 2003. Proud representative of Ottawa!

8. Benjamin, just diagnosed this past January, Benjamin and his family are originally from Australia, but claim Canada as home now. Welcome from your "southern" friends!

9. Lyza, diagnosed in October 2002, Lyza and her family just returned from her Make A Wish trip to DisneyWorld. Hopefully, after visiting Florida, they will think as highly of Americans as I think of her and her family!

10. And the inspiration for this list of all-things Canadian, Julianna Banana and her dad Terry. Terry graciously offered to help me get the music on this site working (shoot, he didn’t just help, he basically did it for me. I’m not sure whether he offered out of the kindness of his heart, or if he simply figured it would be easier to do than take out a restraining order after I sent him 8,000 e-mails begging for technical computer help! I’m so grateful to have music playing on a reliable basis, I’m considering having a tree planted in his honor, or a maple leaf tattood on my …………..no, never mind.) Julianna was dx just a month before Kendrie and in that short time has cultivated a phenomenal fan club on the internet with her witty and inspirational journal messages. Anyone interested in showing support for Julianna and her fight against leukemia can log on to her Caringbridge page and follow the instructions to request one of her Pink Wish Bracelets. Here is a photo showing my and my friend Kelly E., a fellow CB surfer and supporter, wearing our bracelets. Personally, I won’t be taking mine off until both Julianna and Kendrie are done with their treatments and well on their way to planning a Canadian-U.S.-We’ve-Kicked-Leukemia’s-Ass-Reunion!



Photo taken March 17, 2004, Georgia

Please take a minute to stop by these sites and offer the families a word of encouragement.

As for things in the Land of Escoe, this week has definitely been the hardest on Kendrie since getting over induction. We have renamed her “Princess Barfs a Lot and Sleeps Even More” I assume it is the ara-c shots I have been giving her at the house that are causing the reactions. I know her body needs the rest, but two or three naps a day, coming from the child who gave up napping at 20 months, does feel odd. Too bad I can't get her brother and sister to join her, ha!

I want to say a special thank you to all of you who have made comments in our guestbook about living close enough to us to join us for dinner at IHOP, or commiserating in some other fashion. I thought of that yesterday, when Kendrie was on her hands and knees retching in the front yard, and my next door neighbor walked out to the curb to get his mail, glanced our direction, and didn’t even bother to wave. I’ll give him the benefit of the doubt, that perhaps he felt awkward or uncomfortable witnessing first hand that sort of scene, but a simple “Hey, do you need anything?” would have been nice.

Starting Monday, we have the next two weeks OFF from chemo (wahoo, wahoo, it’s a party, wahoo) and except for the antibiotic on the weekends, all we will be doing are local labs for blood counts. I am certainly expecting her numbers to have dropped way down at this point, especially given how tired she is.

So I guess that’s it for now. Just my quick thank-you note to all of Canada (Candian Bacon! How could I have forgotten Canadian Bacon?!?!?!) and all that you’ve done for me personally. Oh, and the only reason I didn't mention my friend Jadine from Canada is because she claims Texas now, but of course she is at the top of the list! If any of you, especially anyone from Canada, have any additions to my list, let me know and I'll add them in! Did I mention I also really like that Twelve Days of Beer song? Weren't those guys Canadian, too?

Have a great weekend, everyone,
Kristie

ps. One last thing. A little boy on my online group, Spencer Rocket who relapsed last month is having a bit of a hard time getting back into remission and is suffering terribly from the side effects of the drugs. His family is hospital bound for quite some time and I know they could use some messages of support and encouragement. Be sure to visit the photo album when you go to Spencer's site.... he is one of the cutest kids I have ever seen! Kerri and Brian, we are thinking of you and praying for Spencer every night!
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KENDRIE’S PERSPECTIVE:

WORST THING ABOUT HAVING CANCER TODAY:
I am missing a LOT of good tv time because I keep falling asleep everywhere ….. the sofa, my bed, mom’s bed ….

BEST THING ABOUT HAVING CANCER TODAY:
(this time, it’s Kristie talking) The fact that she was sleeping so heavy tonight I was able to give her the shot in her leg without her even waking up! And it’s the last shot for several months --- thank heavens!!!

Friday, January 02, 2004

Hello, 2004. So far, you suck.

Kendrie had a clinic appointment today and everything went fine. Her counts are starting to drop a little from the chemo drugs, which is expected. They are still high enough at this point that we can continue to get out of the house. She is scheduled for another lumbar puncture in ten days, so we'll watch the counts and see what happens.

I was all set to update about the cute thing that happened today (ok, at least I thought it was cute) --- when Kendrie chose Blaine's camouflage, Elmer-Fudd hunting cap with extended ear flaps to be her "hat of choice" for the clinic visit. It was huge on her head and looked hysterical. Of course, it being a pediatric oncology clinic, they thought it was funny.

Then, right when I sat down to update this journal I got a gut-wrenching reminder that leukemia is not funny. Nothing about this &## disease is funny. An adorable little girl on my support list, Julianna, had a leukemia relapse in her central nervous system this week. Her dad waited until tonight to let the rest of us know .... her family was waiting on the results of her bone marrow test, which thank the Lord, showed no relapse in her bone marrow.

I think I have felt a connection to Julianna and Terry right from the beginning, for a couple of reasons. Julianna is close in age to Kendrie (she's 3), she's unbelievably cute (like I think Kendrie is), Julianna was diagnosed on Kendrie's birthday, they have the same ALL with the same prognosis, and Julianna's Caring Bridge site was the first one I stumbled across that let me know it was ok to poke a little bit of fun at ourselves and this disease. I have been so inspired by their journal that I've put a link to it in Kendrie's journal in the past, encouraging all of you to read it.

Tonight, I'm putting the link here again, so you can visit their site and please sign their guestbook. I speak from experience when I say that even messages from people we don't know can be encouraging. So please take a minute to offer a word or two of support to this brave little girl, as she and her family prepare to kick her fight against leukemia into over-drive.

Julianna Banana's Home Page

thanks, Kristie